When our oldest daughter, Clara, was 18 months old she was diagnosed with Cohen Syndrome. I also use this space to document our journey with Cohen Syndrome, from first learning of Clara's developmental concerns at age 4-6 months, to where we are today, knee deep in various therapies and many milestones accomplished.
A few links to catch you up:
Dear Clara, (a letter to my girl describing her development & testing over the past three months)
Update on Clara's development: Where things stand at 13 months
Dealing with delays
The day we learned of the Cohen Syndrome diagnosis
Clara's first steps on March 18, 2014
Dealing with delays . . . Part 2
Dear Clara. . . a letter to my girl at age two and a half
On letting go (update on Clara's transition to a full time ABA therapy school)
Clara's latest trick
Moving on up!
Replacing "She Can't" with "She Can"
Special Needs Potty Training (Week 1, 2, 3, and 4)
Joy In The Unknowns
Dear Clara, (a brag letter to my girl at age 4.5 years)
I wait quietly before God, for my victory comes from him. He alone is my rock and my salvation, my fortress where I will never be shaken. Psalm 62:1-2