In November of 2013, after a solid year of procedures and testing, we finally received Clara's diagnosis of Cohen Syndrome.
While the road is not easy, and some moments overwhelming, we are so thankful to have an answer to her challenges and beautiful, unique personality. Clara is a gift and brings so much joy to our lives, challenges and all.
Each year in November we hold a fundraiser to honor Clara's diagnosis month, raise money for the Cohen Syndrome Association (CSA), and to celebrate the special needs community. Due to the rarity of Cohen Syndrome, the CSA does not quality for grants or like funding opportunities, so parent fundraisers are so important!
Friday night November 18th, we will partner with the Greatwood Chick-fil-a in Sugar Land to host a Spirit Night to raise funds for the CSA.
We did this in 2014 and had an amazing turnout! Click here for pictures/recap of the 2014 fundraiser. Look how tiny they were! Tears are forming, friends, as I think about that night.
We hope your family can pop by CFA on 11/18 between 5:30-8:30pm for dinner. Clara (left) and Katherine (right, another local Cohen Syndrome friend) can't wait to see you there! Plus, it's the perfect excuse to eat as many french fries and nuggets and chocolate chip cookies as you desire. Calories don't count on fundraiser nights, right?
15% of the dinner sales that evening will go directly to the CSA. Just place your receipt in the Spirit Night box located on the condiment counter. If pressed for time and prefer to drive-thru, just ask that your receipt go towards the Spirit Night.
If you aren't able to participate in the fundraiser that evening but feel lead to donate to the cause directly, click here.
Please feel free to share this event with your family and friends! Thanks in advance for your love and support towards the special needs community. It takes a village and we couldn't do this without YOU.