Due to the abnormal results, the neurologist highly suggested a 24 hour video EEG to get a better idea of what was going on, how often these seizures were occurring, etc. This test was done in June and honestly, went much better than we anticipated.
Clara was a champ and other than a full-blow tantrum at bedtime and not crashing out until midnight (can't say I blame her, I wouldn't want to sleep with a video camera in my room and 30 stickers glued to my head!), she did very, very well.
A few pictures from said 24 hours . . .
All the wires and main box were contained inside her little cross body purse. Genius move, Dr. R. She only tried to take it off 2-3x and didn't fuss when we put it back on. |
Headed home . . . |
Being monitored for hours on end is exhausting . . . |
Slept like an angel until 9:00am |
Said fluke stressed me out hard core for the last few weeks, but it's all good. :)
This feels like a major win in what has been a season of continual battles (with the state regarding services, insurance regarding treatment, etc). Thank you, God.
We are celebrating!
This post is making me cry happy tears for your family!! That is amazing news- typical activity in a developing brain!! Praise God for that piece of information.
ReplyDeleteThank you! We are so thankful.
DeleteWhat WONDERFUL news!!! Praise God!!
ReplyDeleteAwesome news! So glad the experience went relatively smoothly and that the results were clear!
ReplyDeleteI know you were not looking forward to the 24 hour test, but sounds like it was totally worth it (and thankfully easier than expected)!! So happy you guys got this "win!"
ReplyDeleteHow wonderful!! Yay!!
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