Sunday, April 5, 2020

Dear Chance . . . Five Years in Heaven

Dear Chance, 

How has it been five years since I last saw your little face? I cannot believe how fast time seems to be passing us by. April 4, 2020 . . . you are celebrating five years in heaven. 

We think of you all the time, baby boy. Camille asks about you often and frequently sets an extra chair for you at dinner. She spontaneously told your entire story to a Chick-fil-a employee a few months back, which was so precious. You’ve put the hope of heaven in the heart of your sisters, too, and it’s life giving to see how that plays out over time.



Five years closer to seeing your sweet face again.

“We’ve been given a glimpse of the real thing, our true home, our resurrection bodies! The Spirit of God wets our appetite by giving us a taste of what’s ahead. He puts a little heaven in our hearts so that we’ll never settle for less. That’s why we live with such good cheer. You won’t see us dropping our heads or dragging our feet! Cramped conditions here don’t get us down. They only remind us of the spacious living conditions ahead. It’s what we trust in but don’t yet see that keeps us going. “ 2 Corinthians 5:5-8 MSG. 

Your tree in our backyard, gifted to us at your graveside service, bloomed FULLY these last few weeks, just as it does each year in March. I love that each year we have this symbolism of the cycle of beautiful life that comes from tragic death. 


Camille had 457 questions while looking through your memory book. One day I will have to explain that no, not all of the girls in our family were in the room watching the Doctor cut my tummy open and pull the baby out. :)

We celebrated with ice cream sundaes, courtesy of some super sweet friends who always think of us on your special day. 


Camille took this picture and was giggling the entire time. It reminded me of the truth . . .
Weeping lasts for a time but joy comes in the morning. 

Sunday, March 22, 2020

Modern-Day Joshua Stones


I have a love-hate relationship with social media. On one hand, Instagram and Facebook can be time-suckers, relationship-killers, and potential breeding grounds for comparison and judgement. My mind and heart need limits and boundaries and down-time from screens and technology. But, one thing I do appreciate about social media is how it can serve as an online scrapbook of sorts. Posting on blogs, Facebook, or Instagram is a much easier way to document our days, our Big Moments, rather than ways of the past such as Creative Memories. Typing those two words, Creative Memories, makes me a little nauseous. Jesus, take the wheel. I can write words on the internet all day long, but please don’t ask me to cut zig-zag corners and strategically place stickers all around one big gigantic picture of my two-year-old licking her ice cream cone. The very thought of this task makes me want to cry a million tears (and would also take me 542 years to complete, so the odds are not in my favor.).  
I digress. 
Some of you know we have been praying, for years, for Clara, our oldest daughter with a rare genetic syndrome, to talk, and for her communication to develop and understanding to increase. Specifically, we have prayed for God to open Clara’s mouth and allow her to speak with words. He has answered this specific prayer twice, when Clara vocalized the words, “Hi,” and “No,” when prompted by her teacher at school. 

Well, a few weeks ago, God answered this prayer again. No, not by opening her mouth in our presence. But, through the form of increased awareness played out with the push of a few powerful buttons on her AAC device (Augmentative and alternative communication). So, we are marking the moment, friends, writing it down intentionally for the internet to read, as a permeant memorial so to speak.  Our very own modern-day Joshua stone. 

In Joshua 4:1-8 God commands the Israelites to cross the Jordan River (which He has stopped miraculously). To commemorate their crossing, God instructs Joshua to mark the moment by choosing 12 stones from the middle of the dried-up river. The Message translation of this portion of scripture describes the scene . . . 
1-3 When the whole nation was finally across, God spoke to Joshua: “Select twelve men from the people, a man from each tribe, and tell them, ‘From right here, the middle of the Jordan where the feet of the priests are standing firm, take twelve stones. Carry them across with you and set them down in the place where you camp tonight.’” 4-7 Joshua called out the twelve men whom he selected from the People of Israel, one man from each tribe. Joshua directed them, “Cross to the middle of the Jordan and take your place in front of the Chest of God, your God. Each of you heft a stone to your shoulder, a stone for each of the tribes of the People of Israel, so you’ll have something later to mark the occasion. When your children ask you, ‘What are these stones to you?’ you’ll say, ‘The flow of the Jordan was stopped in front of the Chest of the Covenant of God as it crossed the Jordan—stopped in its tracks. These stones are a permanent memorial for the People of Israel.’”
An intentional, permanent memorial.

Back to Clara . . . 
I drove down highway 59 a few weeks ago and noticed she was acting a bit off for her usual drive-to-school self.  Her face pale, a little zoned out and well, just not typical Clara.  No fever (Why yes, I did put the car in park once securely stopped at a stoplight and reached waaaaaaay in the backseat to feel her head. I do not recommend this.). Going against that mama-gut feeling I dropped her off anyway, told her aide she seemed a little tired, and saw her out of the car. 
At 1:00pm I receive a call from Clara’s lead therapist. . . 
“Hi Brittnie. We wanted to let you know Clara isn’t herself today. She looks pale and has zoned out multiple times. She is just not acting normal. She was even spitting out her food at lunch and wouldn’t even touch her fruit.”
(Clara not scarfing down fruit is a red flag. We basically have to take out a loan to fund the strawberry and blackberry bill.)
Minus the food spitting, all the very things I noticed on the drive to school were now confirmed by her teacher. 
“I also wanted to let you know that when we gave her the iPad and asked, “What do you want?”, she pushed “I feel sad. I’m upset. I feel sick. I want to go home.” 
I’m sorry. I just fainted. What was that you said? She pushed all of those buttons, to express HER FEELINGS IN CONTEXT??? As in, on her own, on a day that you and I BOTH NOTICED PHYSICAL SIGNS OF ILLNESS? THIS HAS NEVER ONCE HAPPENED. NOT ONCE. 
“I feel like we need to positively reinforce her for vocalizing her feelings and needs. Would you like to come get her?”
Do I want to come get her? I. Am. On. My. Way. 
Friends, we pray and pray and pray some more for the things our hearts deeply desire. Sometimes God answers with a yes, a no, or a not yet. And sometimes, He answers yes with a twist. Sometimes, He answers yes in a way that forces us to intentionally look outside the box of ideal answers and praise Him for the sideways course His answer took. 
I don’t want to miss the twist, friends. I want my eyes and heart open to the ways He is working day in and day out, even if His works differ from my initial prayer lifted. 

And when He answers, regardless of the how, I want to intentionally mark it down. I want to intentionally set up stones of remembrance to say, “Look at what God did here!” I want to leave a trail of modern-day Joshua stones. I want to leave behind a stone-filled legacy so that my children and their children will always know that our God is good, and He is always moving on our behalf, and that sometimes His answers don’t come in the form of a straight line.  
Just please don’t ask me to do so via a larger than life scrapbook. 
. . . 
How do you remember God’s kindness? How do you document His answers for the generation behind you? What step of intentionality can you take today to tune-in to his “yesses with a twist?” 
. . . 
(This article was first written & published for my work with the CEO Forum Women's Ministry Monthly Newsletter.)

Saturday, February 15, 2020

TODAY Parenting Team . . . Pregnancy and Infant Loss Awareness (please read and vote!)

Hi Friends!

When the TODAY Parenting Team shared they were taking submissions for Pregnancy and Infant Loss Awareness related material, I knew I wanted to submit a piece in honor of our son, Chance.


Would you take a minute to "vote up my article?" (You can vote once a day!) It would mean the world to me and my family. Each and every vote makes the post more visible to others who could benefit. And feel free to share on your social media channels.

Click here to read and vote. 

Can't believe we will soon be celebrating Chance's 5th year in heaven. How is that possible? Thank you in advance for your love and support.

Wednesday, January 8, 2020

6th Annual Cohen Syndrome Association Fundraiser Results

FRIENDS AND FAMILY . . . 

Results are in and you all SHOWED up for the Cohen Syndrome Association!

Between Crowned Free sales (my sis and I went into business together!), the silent auction, and personal donations, YOU raised a total of $4,432.53 in 2019! What in the world?! A record!

Thank you all so much for the love and support year after year. We feel so lucky to know each and every one of you. ðŸ§¡ðŸ§¡ðŸ§¡ðŸ§¡ðŸ§¡








Wednesday, January 1, 2020

Looking Back to Look Ahead for 2020

It's a new year, friends! Happy January 1st! 

Here's what I was thinking about this time last year.  


I love seeing everyone's top nine from Instagram. Overdone? Maybe, but I think it's fun to be reminded of moments, both mine and other people's, from earlier in the year. It’s no surprise that Clara dominated again this year. Coolest kid, hardest worker, and wisest teacher. Clara sure is easy to love! But, I love that Camille is sprinkled in there, too, because her joy, tenderness, constant compassion, and forgiving spirit (usually gifted to me, ahem) keep us all grounded and running. 

Wrapping up 2019 thankful for all the memories made, milestones achieved*, lessons learned, and yes, even the growing pains. Pruning stinks (as does potty training a child with special needs OMGOSH), but it typically always develops fruit (if we let it).

I'm not really sure what 2020 will hold, but brave obedience and an abundance mindset are two themes God keeps bringing to mind for me this year. I'm sure He will give me plenty of opportunity to live both of these out in real time, hahahaha. (A lot like when you pray for more patience and God doesn't just give you more, but instead gives you opportunity to practice more patience. Fun times!) I/we  usually work through Jennie Allen's New Year Dream Guide, and will be working on it over the next few weeks. No crazy resolutions like in year's past (I die reading some old blog posts omgoodness), just overall themes and taking inventory of what worked well and what needs improvement in all different life areas (spiritual, relational, personal, health, and work). I have found this approach so helpful and useful to truly creating a life of direction and purpose. The guide is free on Jennie's site if that's something that would be helpful to you. 

Here's to an amazing 2020!

And who knows, maybe I will blog again before summer. :) 

*I took on a part-time freelance interviewing/writing job this year (one I can do from home around the girl's schedule), and also went into business with my sister selling Crowned Free, which has been so fun to do together. I do have some writing goals and projects for 2020 on my mind, so that is exciting, too (more to come)! 
© A Joy Renewed. Made with love by The Dutch Lady Designs.